The day Baby was born my world changed forever. Not because I had just become a mother again but because I had become a mother to a child with Down syndrome. At the time I didn’t realise what that actually meant. Because in the early weeks of her diagnosis I was too busy urging her to fight so we could take her home from the neonatal unit.
While having visions of my life being spent constantly in and out of hospitals, living off machine coffee and sitting in waiting rooms or hospital lounges. From the moment they told me my baby had Down syndrome my planned out future was no longer clear. It was all replaced with uncertainty and fear.
I didn’t know what to expect or how to process the information. I was scared I wouldn’t know how to care for a child with additional needs. I felt like I had been thrown into the deep end and I didn’t know how to swim. I was lost and I thought my life was over.
I am happy to say I was so unbelievably wrong! My life was never over, instead a new chapter was beginning for me and my family. I was changing and growing into a better person and I learned to become more accepting of things and I also learned that there are always going to be things that are out of my control. I learnt all of this from watching, loving and spending time with Baby. I don’t know what to say other than she is amazing. She has this air around her that draws people in. Even now at 17 months old she has a way with people, that make them just want stop and smile when she is around. It’s like no matter how bad of a mood I’m in or how stressed out I am she can make it better, when she wants a cuddle and she wraps her little arms around the back of my neck and rests her head on my shoulder and it all melts away.
Most of all though I love her determination. She has had more then enough things thrown at her in the start of her life but she chose to fight and over come almost every hurdle.
When I think back to all the nights, I would sit worrying if she would sit up, talk, crawl or walk. All those tears and moments I feared people would judge my baby as being different or ridicule her for her extra chromosome.
I shouldnt have I should of love my daughter and just stared into her beautiful face and know everything would be ok. I should have enjoyed my baby from the start and not let those things bother me because my Baby is amazing and is forever keeping me in my toes. I won’t change a single thing about her because if I did she wouldn’t be the Baby I know and love with all my heart. She is the best!
As the saying goes:
You can’t be extraordinary without a little “extra”!