#Project365 – Week 15

This week has been the start of half term and although I have tired to stay busy with the kids. I haven’t always remembered to take snaps of what we have been up to.

But here is my week minus a few really awesome pictures I wish I had taken. 

Day 96 

 Here is Baby, enjoying the sun and her first time on a trampoline. She isn’t normally in just a vest but in the midday sun it was really warm. I must say I love his the static has affected her hair, she looks so cute!

Day 97 

This was my attempt at a healthy breakfast after to chocolate fest that was Easter Sunday. I know it’s not really healthy but it has fruit in it. 

Day 98 

Tuesday I thought I would share how amazed I was that baby could sleep in such I weird positions on a regular basis. I know this is all part and parcel on her low muscle tone, which cause hypermobility, which is part of her Down syndrome but it’s still amazing watching her do the splits or sleep hugging her legs etc. 

What do you think? 

Day 99 

I love flowers and I buy myself a bunch every week when I do the shopping, just because they make me happy  and my house smell lovely. Plus they are amazing to snap a quick photo of, if I’m in a pinch and need a bit of inspiration. 

Day 100 

The boys wanted to go camping but because it was short notice, I don’t drive and it was after 6pm, they had to settle for a night of sleeping with me in a tent in the garden. 

I only agreed because I thought they would give up and say they wanted to go inside after a hour or so. But they didn’t and they adored the whole night and slept outside on the hard ground, much to my dismay. I coped by dreaming of my bed.

Day 101 

 I realise I take far too many pictures of food but this one was actually for #snaphappybritmums and it’s #betterwithcake prompt. I know it’s not cake but it had to do.

Day 102 

Here is Baby enjoying her first trip out on her sisters hand me down smart trike. I would have brought her, her own but E is much happier with her peddle bike which means I can save money and they both can enjoy the fun.

So that’s my week, how was yours? 

Nikki x 

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Feeling deflated! 

For the past couple of days I have been finding it hard to be my normal, bubbly, excited and happy self. 

No matter what I try to do to perk myself up I just feel run down, unhappy and beaten by life.

It’s like this gloomy cloud that is just hanging over me and the little things that don’t bother me normally or I can usually brush off and forget about are actually starting to bother and get to me.

For example yesterday as I was watching Baby and her sister playing happily in the park together.

  

Baby was thrilled to finally be getting the chance to try something other then the swings. she was truly loving the freedom. 

As I watched them play I started thinking about how often we are going to be able to go to park now the weather is nicer and about when I use to take E when she was Baby’s age and watch her run around and climb the climbing frame and go down the slide. Then I started to think about how long it’s going to be before Baby will be able to do that.

It was then my chest started to tighten and my heart ached because I finally noticed and realised that Baby wasn’t walking yet. All of her little friends at playgroup are toddling and she has just started to master standing and a bit of cruising. 

At that moment I saw a family with a child younger then Baby and he was running in front of his parents into the park. I nearly broke down in tears right in the middle of the park because I finally starting to see her learning delays. 

I always knew it takes children with DS that little bit longer to learn new thing and they don’t just pick things up and Baby has been so amazing at learning things quickly and has been hitting all her milestones that I just never really noticed a difference between her and other children her age. 

I guess what I’m trying to say is that first realisation can as a shock. It knocked me for six and it has had me worrying and brought back a load of fears and emotions I thought I had already dealt with. 

And it has left me feeling really deflated! 

Nikki x 

word of the week

The Reading Residence

#Project365 – Week 13

We haven’t done very much this week as I haven’t been at my best and now the kids are ill too. But here’s my week 13. 

Day 81

On Sunday we went to the Sunshine and Smiles World Down syndrome celebration. It was a great day and they had Singing Hands perform which was amazing too. I must say I was rather star struck when they tried talking to me and Baby and just didn’t know what to say. 

Day 82

My kids completely adore Lego and where so happy that these cane in the post while they were at school. 

Day 83

On Tuesday while I snapped this pretty cool picture of the clouds and the way the sun was shine and light them all up. I though it was beautiful. The amazing little things you see while on the school run. 

Day 84

I went into to have all 4 of my wisdom teeth removed and while I was waiting to go down the theatre I thought I would share my sexy hospital stockings. 

Day 85

They said I should expect some swelling and bruising but I was shocked at how much my face has swelled up. They did explain that they had complications removing my bottom 2 wisdom teeth and had to actually chip away some of my jaw bone. It’s safe to say I look like a character from a beano comic. 

Day 86

We received this beautiful personalised apron for Baby from Isabella Peters in honour of World Down Syndrome week. I was so blown away when she offered to send Baby something and I must say it’s absolutely gorgeous and I am completely in love. 

Day 87

Last night I was tagged in a #widn post on Instagram. So I thought I would share my diet of the week. Soup! My face is really swollen and sore so eating isn’t easy, then add the stitches and I have no plans to be trying to chew anything for a while yet.

Day 88

The boys decided to build a Den/fort in their bedroom. I must say I’m rather impressed as they have done it all on their own. I had told them, if their really well behaved they can leave it up and both sleep inside it tonight.

So there you go that’s my week in pictures.  

How’s your week been? 

Nikki x 

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Why having a child with Down syndrome is the best!

The day Baby was born my world changed forever. Not because I had just become a mother again but because I had become a mother to a child with Down syndrome. At the time I didn’t realise what that actually meant. Because in the early weeks of her diagnosis I was too busy urging her to fight so we could take her home from the neonatal unit.

While having visions of my life being spent constantly in and out of hospitals, living off machine coffee and sitting in waiting rooms or hospital lounges. From the moment they told me my baby had Down syndrome my planned out future was no longer clear. It was all replaced with uncertainty and fear.

I didn’t know what to expect or how to process the information. I was scared I wouldn’t know how to care for a child with additional needs. I felt like I had been thrown into the deep end and I didn’t know how to swim. I was lost and I thought my life was over.

I am happy to say I was so unbelievably wrong! My life was never over, instead a new chapter was beginning for me and my family. I was changing and growing into a better person and I learned to become more accepting of things and I also learned that there are always going to be things that are out of my control. I learnt all of this from watching, loving and spending time with Baby. I don’t know what to say other than she is amazing. She has this air around her that draws people in. Even now at 17 months old she has a way with people, that make them just want stop and smile when she is around. It’s like no matter how bad of a mood I’m in or how stressed out I am she can make it better, when she wants a cuddle and she wraps her little arms around the back of my neck and rests her head on my shoulder and it all melts away.

Most of all though I love her determination. She has had more then enough things thrown at her in the start of her life but she chose to fight and over come almost every hurdle.

When I think back to all the nights, I would sit worrying if she would sit up, talk, crawl or walk. All those tears and moments I feared people would judge my baby as being different or ridicule her for her extra chromosome.

I shouldnt have I should of love my daughter and just stared into her beautiful face and know everything would be ok. I should have enjoyed my baby from the start and not let those things bother me because my Baby is amazing and is forever keeping me in my toes. I won’t change a single thing about her because if I did she wouldn’t be the Baby I know and love with all my heart. She is the best!

As the saying goes:

You can’t be extraordinary without a little “extra”!

 

Nikki x

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#WickedWednesday #6

This week has been a week full of sulky faces.

 

This was Baby on Saturday because mummy said no to giving her my phone. 

As I stated on my Instagram picture. People who say people with Down syndrome are always happy need to just take a look at this picture. It’s a perfect example of Baby throw an tantrum because she isn’t getting her own way.

Don’t worry I was nice enough to take more pictures of this tantrum (to save for her 18th birthday cake!). So you could see what I have to put up with from my 17 month old. 

Can you say early terrible two’s? 

As you can see she went on to try the “I’ll look really cute while I cry” tactic, to see if I would give her my phone.

  That did work so she went back to tantrum mode.

  She nearly broke me with the “Why mummy?” Look but I stood firm and I didn’t give her my phone. So….. 

  ….she decided to go for my iPad instead.

  The tears quickly dried up and she was back to smiley Baby again. 

Just goes shows, how much of a little madam she can be. 

She wasn’t the only little madam this week though. E has been join her in the sulky tantrum stakes although her wasn’t nearly as cute but was rather funny. 

  

Here is a sulky E because I told here I didn’t know where she put her new Lego magazine. I know I’m such a terrible mummy for not knowing where she left it last. 

I did find it 5 minutes after this picture hidden in the sock basket and when I told E her reply was “Your silly mummy, the socks wanted to read too!”

So there’s my #WickedWednesday which has been full of sulky, tantruming girls. Thankfully my boys have been good ish.

Nikki x 

 

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#BWphotoproject – Hearts

 

I was playing with photos and having my beautiful baby posing for a great snap that I could use for World Down Syndrome Day.

I think this photo is great because it doesn’t just raise awareness for Down syndrome but also heart awareness and that no matter what she is always be in my heart. 

We were really lucky that the 2 holes is baby’s heart at birth closed on there own as she got older and she was discharged from her heart specialist at 8 week old. 

Some parents aren’t as lucky as us and I want them to to they ar always in my thoughts.

Nikki x 

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#Project365 – Week 12

This week is an exciting week because it has Mother’s Day, My 1st Blogiversary and World Down Syndrome Day. 

It’s a very busy and full of fun week.

Day 74 

 

My Hubby and kids made me a special Mother’s Day breakfast. I must say it brought a smile to my face 😀 I am a very lucky mummy!

Day 75  

 

We had a poorly E who was on Monday, high temp, runny nose and feeling sorry for ourselves. Luckily calpol and mummy cuddles where prescribe with docmcstuffins on sky planner. She was fine and back to school the next day.

Day 76 

 

Tuesday was my first Blogiversary and I have some lovely pictures in my post all about it here. I hadn’t realised that Monday had been the start of Down syndrome awareness week. So I made baby a little poser (she was a natural!) and made this picture. I must say I’m pretty proud of both her and the picture.

Day 77 



E was a really brave girl when she went for her preschool booster. She didn’t even cry. she did get a little upset on second injection, but it was nothing a super mummy cuddle couldn’t fix. Super proud mummy at how much a trooper she is 🙂 

Day 78

Baby got her first pair of Piedro boots from her Orthotics doctor. She was given these and some splints because has a lot of movement in her ankles (due to hypotonia) these boots and ankle will give her the extra support she will need to stand and eventually walk. They are already working wonders and I think there beautiful.

Day 79

 

I almost forgot to take a picture on Friday and I only remember when I was in middle of dying my hair. So I had to settle for this lovely hair dye selfie. 

I know it’s so flattering lol 


Day 80



Today 21st March and it is World Down Syndrome Day! 

This is our #lotsofsocks for #worlddownsyndromeday #WDSD2015 #WDSD15 #downsyndrome #trisomy21 #teamT21 #21stmarch 

Today is world down syndrome day because people who are born with the genetic condition Down syndrome have 3 copies of the 21st chromosomes and the 21st of March is the 21st of the 3rd month.

We ask you to wear lots of colourful socks to show that everyone may be different but we as still the same. Plus if you add the heels of sock together but turn one sock upside down it makes and X which is the shape of a chromosome. 



💛💙💛💙💛💙Happy WDSD everyone💛💙💛💙💛💙

So there you go that my week in pictures 🙂 

I hope you have had a great week and I can’t wait to see your photos.

Nikki xxx

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