#Project365 – Week 15

This week has been the start of half term and although I have tired to stay busy with the kids. I haven’t always remembered to take snaps of what we have been up to.

But here is my week minus a few really awesome pictures I wish I had taken. 

Day 96 

 Here is Baby, enjoying the sun and her first time on a trampoline. She isn’t normally in just a vest but in the midday sun it was really warm. I must say I love his the static has affected her hair, she looks so cute!

Day 97 

This was my attempt at a healthy breakfast after to chocolate fest that was Easter Sunday. I know it’s not really healthy but it has fruit in it. 

Day 98 

Tuesday I thought I would share how amazed I was that baby could sleep in such I weird positions on a regular basis. I know this is all part and parcel on her low muscle tone, which cause hypermobility, which is part of her Down syndrome but it’s still amazing watching her do the splits or sleep hugging her legs etc. 

What do you think? 

Day 99 

I love flowers and I buy myself a bunch every week when I do the shopping, just because they make me happy  and my house smell lovely. Plus they are amazing to snap a quick photo of, if I’m in a pinch and need a bit of inspiration. 

Day 100 

The boys wanted to go camping but because it was short notice, I don’t drive and it was after 6pm, they had to settle for a night of sleeping with me in a tent in the garden. 

I only agreed because I thought they would give up and say they wanted to go inside after a hour or so. But they didn’t and they adored the whole night and slept outside on the hard ground, much to my dismay. I coped by dreaming of my bed.

Day 101 

 I realise I take far too many pictures of food but this one was actually for #snaphappybritmums and it’s #betterwithcake prompt. I know it’s not cake but it had to do.

Day 102 

Here is Baby enjoying her first trip out on her sisters hand me down smart trike. I would have brought her, her own but E is much happier with her peddle bike which means I can save money and they both can enjoy the fun.

So that’s my week, how was yours? 

Nikki x 

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Feeling deflated! 

For the past couple of days I have been finding it hard to be my normal, bubbly, excited and happy self. 

No matter what I try to do to perk myself up I just feel run down, unhappy and beaten by life.

It’s like this gloomy cloud that is just hanging over me and the little things that don’t bother me normally or I can usually brush off and forget about are actually starting to bother and get to me.

For example yesterday as I was watching Baby and her sister playing happily in the park together.

  

Baby was thrilled to finally be getting the chance to try something other then the swings. she was truly loving the freedom. 

As I watched them play I started thinking about how often we are going to be able to go to park now the weather is nicer and about when I use to take E when she was Baby’s age and watch her run around and climb the climbing frame and go down the slide. Then I started to think about how long it’s going to be before Baby will be able to do that.

It was then my chest started to tighten and my heart ached because I finally noticed and realised that Baby wasn’t walking yet. All of her little friends at playgroup are toddling and she has just started to master standing and a bit of cruising. 

At that moment I saw a family with a child younger then Baby and he was running in front of his parents into the park. I nearly broke down in tears right in the middle of the park because I finally starting to see her learning delays. 

I always knew it takes children with DS that little bit longer to learn new thing and they don’t just pick things up and Baby has been so amazing at learning things quickly and has been hitting all her milestones that I just never really noticed a difference between her and other children her age. 

I guess what I’m trying to say is that first realisation can as a shock. It knocked me for six and it has had me worrying and brought back a load of fears and emotions I thought I had already dealt with. 

And it has left me feeling really deflated! 

Nikki x 

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The Reading Residence

Why having a child with Down syndrome is the best!

The day Baby was born my world changed forever. Not because I had just become a mother again but because I had become a mother to a child with Down syndrome. At the time I didn’t realise what that actually meant. Because in the early weeks of her diagnosis I was too busy urging her to fight so we could take her home from the neonatal unit.

While having visions of my life being spent constantly in and out of hospitals, living off machine coffee and sitting in waiting rooms or hospital lounges. From the moment they told me my baby had Down syndrome my planned out future was no longer clear. It was all replaced with uncertainty and fear.

I didn’t know what to expect or how to process the information. I was scared I wouldn’t know how to care for a child with additional needs. I felt like I had been thrown into the deep end and I didn’t know how to swim. I was lost and I thought my life was over.

I am happy to say I was so unbelievably wrong! My life was never over, instead a new chapter was beginning for me and my family. I was changing and growing into a better person and I learned to become more accepting of things and I also learned that there are always going to be things that are out of my control. I learnt all of this from watching, loving and spending time with Baby. I don’t know what to say other than she is amazing. She has this air around her that draws people in. Even now at 17 months old she has a way with people, that make them just want stop and smile when she is around. It’s like no matter how bad of a mood I’m in or how stressed out I am she can make it better, when she wants a cuddle and she wraps her little arms around the back of my neck and rests her head on my shoulder and it all melts away.

Most of all though I love her determination. She has had more then enough things thrown at her in the start of her life but she chose to fight and over come almost every hurdle.

When I think back to all the nights, I would sit worrying if she would sit up, talk, crawl or walk. All those tears and moments I feared people would judge my baby as being different or ridicule her for her extra chromosome.

I shouldnt have I should of love my daughter and just stared into her beautiful face and know everything would be ok. I should have enjoyed my baby from the start and not let those things bother me because my Baby is amazing and is forever keeping me in my toes. I won’t change a single thing about her because if I did she wouldn’t be the Baby I know and love with all my heart. She is the best!

As the saying goes:

You can’t be extraordinary without a little “extra”!

 

Nikki x

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#Project365 – Week 12

This week is an exciting week because it has Mother’s Day, My 1st Blogiversary and World Down Syndrome Day. 

It’s a very busy and full of fun week.

Day 74 

 

My Hubby and kids made me a special Mother’s Day breakfast. I must say it brought a smile to my face 😀 I am a very lucky mummy!

Day 75  

 

We had a poorly E who was on Monday, high temp, runny nose and feeling sorry for ourselves. Luckily calpol and mummy cuddles where prescribe with docmcstuffins on sky planner. She was fine and back to school the next day.

Day 76 

 

Tuesday was my first Blogiversary and I have some lovely pictures in my post all about it here. I hadn’t realised that Monday had been the start of Down syndrome awareness week. So I made baby a little poser (she was a natural!) and made this picture. I must say I’m pretty proud of both her and the picture.

Day 77 



E was a really brave girl when she went for her preschool booster. She didn’t even cry. she did get a little upset on second injection, but it was nothing a super mummy cuddle couldn’t fix. Super proud mummy at how much a trooper she is 🙂 

Day 78

Baby got her first pair of Piedro boots from her Orthotics doctor. She was given these and some splints because has a lot of movement in her ankles (due to hypotonia) these boots and ankle will give her the extra support she will need to stand and eventually walk. They are already working wonders and I think there beautiful.

Day 79

 

I almost forgot to take a picture on Friday and I only remember when I was in middle of dying my hair. So I had to settle for this lovely hair dye selfie. 

I know it’s so flattering lol 


Day 80



Today 21st March and it is World Down Syndrome Day! 

This is our #lotsofsocks for #worlddownsyndromeday #WDSD2015 #WDSD15 #downsyndrome #trisomy21 #teamT21 #21stmarch 

Today is world down syndrome day because people who are born with the genetic condition Down syndrome have 3 copies of the 21st chromosomes and the 21st of March is the 21st of the 3rd month.

We ask you to wear lots of colourful socks to show that everyone may be different but we as still the same. Plus if you add the heels of sock together but turn one sock upside down it makes and X which is the shape of a chromosome. 



💛💙💛💙💛💙Happy WDSD everyone💛💙💛💙💛💙

So there you go that my week in pictures 🙂 

I hope you have had a great week and I can’t wait to see your photos.

Nikki xxx

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My first Blogiversary

This is a post that has been playing on my mind for the last few weeks. You see as the weeks turned quickly to days. I was wondering what I would actually do to mark this occasion.

Would I do a review, a giveaway, write a deep meaningful post or just mumble along through a random post and see what I can up with. (If you can’t guess I have chosen the latter)

Then a really happy coincidence happened. I was given a spa day voucher by the Hubby at Christmas and I had booked the day for me and one of my best friends to enjoy. We had thrown around some dates and I had actually booked the 17th March for our day together, not realising it was our spa day. (A very happy surprise)


I must say we had a great day and the rest and relaxation of my spa day was excatly what I needed. We even went out for a kid free lunch at Nando’s. Which was extremely strange but also really nice. It was a proper lady’s that lunch sort of day and was prefect to celebrate my first Blogiversary.

I will say that that most of today has been spent with me thinking back about when and why I first started my blog.

It was the begin of Down syndrome awareness week (just like it is now) and it was also my first one as a DS mum and at the time and I still wasn’t in the best of places when it came to fully accepting my daughter’s DS. It was a hard time, so I wanted to learn more about my daughters condition and other parents experiences. This meant I was reading loads of different blogs, that DS parent from all around the world.

It was then that I decided that I would join the world of bloggers and I would put my little Baby’s story out there. I am really glad I did because it help me get all my feelings out and it help me come to terms with everything my  family and I were going through. It was great and by the time I had written a handful a post my feelings had already started changing. A year on I can happily say the DS isn’t an issue anymore. Compared to when I started this blog and DS was always in my mind, now I hardly ever think about it. I can go days, weeks and sometimes even months without DS being in my thoughts. When I look at my Baby I don’t just think DS anymore, I think of how much of a wriggle bum she is, how much she loves cuddles, how she cries if someone around her is sad or how she is as stubborn and determined as I am.

It is because of this determination that I know she will be fine and that baby won’t let anything stop her.

It is also why my blog has changed numerous times of this year as I find where I belong and what I want to share. I think I have finally found my little bit of the blogosphere. I have made it my own and it maybe be a bit random, a bit disorganised and full on my children. But that’s me!

I find it hard to believe that I have been blogging a year! It has been a great and what a year I might add. And that Something that started out as a random thought and as just a hobby, is now this massive part of my life. I don’t think I would know what to do without it.

So here is to a great year everyone and a massive thanks to all my followers on here, twitter and my blog Facebook page.

I hope you all enjoy reading and I can write another post similar to this on my 2nd Blogiversary.

Happy Blogiversary to me!

Nikki x

Super Busy Mum

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The 5 chores I wish I didn’t have to do!

We all have those chores or odd jobs around the house that we completely hate! The jobs that make us groan out loud at the very thought of. 

I am no different and I have a list as long as my arm of job I can put up with but I also have a list of jobs I would avoid like the plague and I am more then happy to past off to my hubby or I will leave them until they really need to be done or even better I just won’t do them at all!
(I know that makes me sound really bad but not all of these job at that important)


So here my list

  • The Washing Up

I completely hate the washing up with a passion but with 7 of us living in 1 house. It not exactly something that can be left. Luckily for me though it was a job my hubby happily agreed too and I very nearly had it write in to our wedding vow.
“I promise to love, honour and always wash up” has a catching ring to it wouldn’t you say?

  • Pairing socks

In this house it’s a fend for yourself kind of approach to pairing socks. I just can’t stand sitting there pairing and matching socks because you are never fully finished because there is always those few left over singles that you can never find the match to. It infuriate me, so instead of putting myself through the undo stress of marrying socks. I just put them all in a basket and you fend for yourself and if you find a pair, BONUS!

  • Ironing

Some people say they love ironing but I just do not see the appeal. Specially when I know my kids will just end up rolling around creasing them again or shoving them in a draw very untidily. I save my time and sanity and only iron if I have too or I’ll ask the hubby to do it.

  • Scrubbing the toilet

I think this is a universal one for most people. I know it needs doing and I will do it if and when I have too, but it a very unpleasant experience. Specially when I have 2 boys at home that seriously need to work on their target practise.

  • Sorting through the clutter

This is one of those tedious jobs that I hate. Mainly because of the constant onslaught of paper work I get given for the kids school or hospital appointments. Then there is the fact that they never stop growing out of clothes or  mixing up and breaking their toys. Which means that at least once a month I have to go on a declutter mission that ends up taking hours or sometimes days out of my life. Just for the clutter to re-accumulate within a matter of days.

So there you go my lists of job that I despise having to do but will do if I have too. (Well apart from the socks, I’m just not going there)

Do you have any jobs that you hate?

Is there any job you won’t do?

And who does them for you, if you don’t?

Nikki x

 

Mami 2 Five