Why having a child with Down syndrome is the best!

The day Baby was born my world changed forever. Not because I had just become a mother again but because I had become a mother to a child with Down syndrome. At the time I didn’t realise what that actually meant. Because in the early weeks of her diagnosis I was too busy urging her to fight so we could take her home from the neonatal unit.

While having visions of my life being spent constantly in and out of hospitals, living off machine coffee and sitting in waiting rooms or hospital lounges. From the moment they told me my baby had Down syndrome my planned out future was no longer clear. It was all replaced with uncertainty and fear.

I didn’t know what to expect or how to process the information. I was scared I wouldn’t know how to care for a child with additional needs. I felt like I had been thrown into the deep end and I didn’t know how to swim. I was lost and I thought my life was over.

I am happy to say I was so unbelievably wrong! My life was never over, instead a new chapter was beginning for me and my family. I was changing and growing into a better person and I learned to become more accepting of things and I also learned that there are always going to be things that are out of my control. I learnt all of this from watching, loving and spending time with Baby. I don’t know what to say other than she is amazing. She has this air around her that draws people in. Even now at 17 months old she has a way with people, that make them just want stop and smile when she is around. It’s like no matter how bad of a mood I’m in or how stressed out I am she can make it better, when she wants a cuddle and she wraps her little arms around the back of my neck and rests her head on my shoulder and it all melts away.

Most of all though I love her determination. She has had more then enough things thrown at her in the start of her life but she chose to fight and over come almost every hurdle.

When I think back to all the nights, I would sit worrying if she would sit up, talk, crawl or walk. All those tears and moments I feared people would judge my baby as being different or ridicule her for her extra chromosome.

I shouldnt have I should of love my daughter and just stared into her beautiful face and know everything would be ok. I should have enjoyed my baby from the start and not let those things bother me because my Baby is amazing and is forever keeping me in my toes. I won’t change a single thing about her because if I did she wouldn’t be the Baby I know and love with all my heart. She is the best!

As the saying goes:

You can’t be extraordinary without a little “extra”!

 

Nikki x

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6 months today!

6 months ago today she entered our lives and gave us a massive shock.

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It’s hard to believe how quickly time has flown by.

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In the early days all I really remember is my fear. I was scared for her future and about not being sure what it would hold or if she would every be able to do things like an average child. I remember asking the nurses and doctors in neonatal and being told “she should be able to”. That wasn’t good enough for me though because I wanted to be told it

would all be ok!

The first few weeks were a blur and all I wanted was for everything to be ok and for me not to just see Ivy as Down syndrome. It wasn’t that I didn’t love her cause I did, but every time I looked at her at first it’s all I could see. She was beautiful and amazing but all my early memories are blurred with my fear, worry and now regret because at first I wasn’t able to let it go and enjoy my amazing baby.

Slowly as timed passed Ivy started to show me why she was more and why I should love her for everything she had achieved.

Her first smile

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Holding her head

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And of course being beautiful

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I wonder to myself why I was ever scared or what about the situation caused my fear because my child is more then just Down syndrome she is

IVY

and she is going to take on the world and show it what she is made of!

In the last 6 months my life has brought me more joy then I can ever imagine (and quite a few grey hairs too) but I wouldn’t change a single second of it, because without those tears or that fear I would have never of been able to push through and realise that my family are great and I would have continued to take it all for granted an never realise how amazing they all are.

Now the fun begins though because the next 6 months contain all our birthdays (3 of which are in September)

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The prep and planing begins 🙂

Nikki ❤